SERVICE USER CONFERENCE AT OTAGO UNIVERSITY TODAY

tress_pass1

AS PART OF MY ROLE OF ADVOCATING FOR PEOPLE DEALING WITH THE

CCDHB ADDICTION SERVICES

WE DEFINE MY ROLE AND WHAT THE PERSON MAY EXPECT FROM ME;

I declare and agree to act as the advocate for the “service user” named in this document in relation to his dealings with CCDHB Addiction Services. The meaning of this document is for me to act in best faith and without restriction on the behalf of the “service user”.

I understand the meaning and implications of, and undertake to ;

  • Meet and exceede the responsibilities granted to me as an advocate, including, but not limited to ; client confidentiality, privacy, timely work ethic, availability etc.

  • Act in the best interests of the “service user” at all times. …. ETC ETC ETC

OPEN EMAIL TO ALL ;

HI

You may have heard of me, but I doubt it. You may think highly of some of my work. [doubt that too]… You may think some of my thinking, efforts to help and / or advocacy are bloody brilliant. You may just think I am a total dick head, pain in the arse or (more possibly) worse. Your opinion of me matters little. 

You may not have heard of me. In which case, the opening paragraph may intrigue. If you have not consigned this email to the trash already, of course.

I have been working for those on the bottom of the addiction ladder – the ones who fly under the radar. They do not even appear in studies or data. They WANT to hide. In general they are methadone maintenance addicts. In general the people I talk to most are the sorts who would listen to punk, have really bad tattoo’s, little teeth, no health insurance plans, no stock portfolio and have trouble buying new shoes when the pavement comes through the heels of their boots….

Recently I have been advocating for a guy. All totally legal, above board. All totally professionally.

All without raised voices, fists or clandestine drone strikes. We, service user and advocate, go to meetings with CCDHB Addiction Specialist Doctors and ask pertinent questions. When the answers are ambiguous or misleading, we ask for clarification. We ask for which “textbook”. We ask for the name of the “quoted study”. We ask for the “rulebook”.

HELL, these people will not even tell us who filled out a trespass order on me. The service user (my client) presented there on Friday evening (three days ago) and they offered him a

much better advocate- one with the ear of the hospital“.
“Who is this?”
They didn’t say.
“Who banned my advocate?” the user asks.
I don’t know, but not me” his case worker replies. 

This is NORMAL. Everyone there says “it was a team decision” or “the doctor” or “the other worker” or…. You get the picture. No one ever puts forward a name. And, when a name finally appears, the real faces that go with the names are still many many levels and locked doors away.

So, I have been trespassed.

Attending the conference at Otago Uni today and tomorrow would ruin me – being liable for $1000 fine and / or 3 months in jail if I step onto the CCDHB grounds without applying for, and receiving a waiver with twenty four hours advance.

The “specialists” in addiction take the cake. And end up eating most of it.

My own history is of many years addiction to opiate pain killers. Although not being “with the service” for twenty years, when presenting at A&E with spinal difficulties, morphine or opiate style medications are dosed happily. A regime the ward and the Neurosurgery guys continue, sometimes even adding more to the mix. (Cauda equina and a really nice advanced example of arthritis can be bloody sore, let me promise you. I kid you not, with all seriousness – having this pain is NOT DRUG SEEKING BEHAVIOUR)

The CCDHB ADDICTION (DIS)SERVICE will take away all that pain relief that keeps me able to move and replaces it with 2x500mg PANADOL four times daily. Leaving me unable to move with ease. Clinically, some would best describe this movement as “Having Dangerous Gait”.

Their only reason for doing this is that I am an addict and they are worried they are giving me “addictive drugs”. >(“addictive drugs” itself a very debatable rationale that deserves more scrutiny…)

*** I AM NOT THE ONLY ONE ***

My friend died last Sunday. His last words to me were “thank you for helping with the clinic” (although he swore and called them names)… He had cancer of the lungs. He could not breathe at night time. His “addiction” status took precedence over his status as “dying in pain”. He had weeks to live and yet the “addiction services” took away pain medication and forced him to only take his daily dose of methadone during nurses rounds first thing in the morning. He was awake at midnight with chest pain, anxiety and difficulty breathing. I am not a cancer specialist whom could say for a fact this is a bad thing, but neither are the addiction services.

Unfortunately this story is repeated time and time again. There are so many… The guy I am advocating for in this instance is another.


RATHER THAN ANSWER MY POLITE QUESTIONS ABOUT WHY MY CLIENTS MEDICATIONS WERE REVIEWED AND ALTERED WITHOUT HIS CONSENT, INPUT OR KNOWLEDGE THEY TRESPASSED ME.

No reason given. Typically, I cannot even find anyone in the CCDHB whom can tell me whom filed the trespass. There is no name on it. No nothing. Spent fifteen minutes on the phone to “security orderlies boss” SANDY (no last name, as per normal CCDHB guidelines – where do they get all these people with no surnames?!!). She would not let me record the conversation. She would not let me attend mental health users conference today or tomorrow. Would not let me enter the grounds on advocacy business. But would let me enter only for my own pain management procedures later this week. She also told me that she would contact “legal” straight away and they would get “straight back to me”.


There needs to be a strong consumer movement in this area, at the very least some funding for advocacy at a one on one meeting level. I am not the person to do this long term. Could I be the person to make a song and dance and draw attention to the issues. My super hero as a kid was GUY FAWKES after all…… .;-)


I still do not know whom trespassed me, nor the reasons as to why. “Legal” has still not “got straight back to me.”

Thank you for your time.

Really hope all your work with the likes of SERVICE USER CONFERENCES goes well.

May the next ones be held on the reality side of CCDHB demarcation line.

ccdhb_tress_ajnon

………………….. Catherine did not forward anything. “Security manager” had not got anything from Catherine. Typical.

Government talks of TRANSPARENCY and PUBLIC ACCOUNTABILITY.

I talk of BULLSHIT. I talk of people like Clarissa Broderick with no mandate to treat you like shit, treating you like shit.

clarissa_facebook

……

God grant us something or other, SERENITY SEEMS WAY OFF. I would settle for a quick fiddle with her older sister, HARMONY.

Go read the previous post on this, the worlds shittest blog… Much nicer stuff to be thinking of.

And now I am getting into my non warrant, non rego, non legal car to go and look at doing some very non legal work.

I am a builder.
My back is shot.
I am an invalids benefit owner.
I am broke.
Birthdays and Christmas and child care.

I will go work on a roof for a few hours here and there.

I will then have money to get car legal. Maybe get some stuff for Christmas.

May even have enough money to start using opiates again as my back will kill me.

Just hope the cops don’t catch me driving.
The Inland Revenue don’t find out about me earning a hundred dollars.
And better not let the addiction services find a 10mg morphine pill in my vicinity.

They will tie me down and give me a 120mg a day methadone addiction instead.

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